Supports for Care Navigation
Navigating healthcare for a child with complex needs takes time and knowledge. This section includes tools to help you prepare for appointments, manage health information, understand care transitions, and find the right services.
These are not funding programs. They are practical guides and trusted resource links to help families understand what supports exist, where to start, and what to think about next.
Transition planning
Planning ahead for adulthood can help ensure the right supports are in place before services change at age 19.
Preparing for adulthood (ages 14-18)
Transition planning helps youth prepare for life after high school. This may include exploring post-secondary education, employment, housing options, healthcare transitions, community participation, and independent living skills. Starting early allows families more time to learn about available supports and services.
What happens when my child turns 19?
Many pediatric programs and services end or change when a young person becomes an adult. Families may need to transition to adult healthcare providers and adult disability services. Planning ahead can help ensure supports are in place before these changes occur.
Understanding CLBC
Community Living BC (CLBC) funds supports and services for eligible adults with developmental disabilities and some individuals with FASD or autism. Services may include employment supports, community inclusion programs, residential services, and planning assistance. Eligibility requirements apply.
Healthcare navigation tips
Small steps to help you stay organized and prepared across appointments and care transitions.
Keeping medical records organized
Keeping copies of important reports, assessments, medications, appointment notes, and contact information can make it easier to coordinate care and access services. Many families find it helpful to keep both digital and paper copies of important documents.
Preparing for specialist appointments
Before an appointment, consider writing down questions, concerns, symptoms, medications, and recent changes in your child's health. Bringing relevant reports or records can also help ensure the appointment is as productive as possible.
Using the Child Health Passport
The Child Health Passport is a tool developed by HealthLink BC to help families track health information, medical history, medications, immunizations, developmental milestones, and healthcare providers. It can help families stay organized and share important information with healthcare professionals.